|Posted by 4pawsforalex on May 14, 2009 at 7:08 PM|
Boy has it been a long time since we last posted. A lot has been going on. We had an appointment in Boston in the beginning of April, and we added another seizure med.
Alex had been having quite a few absence seizures and we were really concerned that he was missing a lot at school. And not to mention he was very spacey. So we started the new med (Zarontin) Easter Sunday. I truly have to say that this might be the only medicine Alex has taken that we have seen a quick response. It was a matter of days and we saw no more absence seizures. Amazing how medications work! However, the medicine has a few side effects, since all three medicines cause drowsiness Alex's is having a difficult time staying awake in the afternoon. Some days he needs a 3-4 hour nap. He was very tired when he first started it.
He has been making good steady progress in school, and is doing well with seizures. Of course, we always say that and yet usually something happens shortly after. We are inspired with recent articles that were published in Newsweek April 20th edition. It was mostly about Epilepsy. A lot of research taking place, new doctors, new drugs...and hopeful stories. Someday we look forward to having our sweet little boy back, the one we knew before this disease took over.
On another note, we have been working very hard with Alex's service dog Honor! He has been such a wonderful addition to our family. I know that he has made a difference in Alex's seizures. There are days that I am unsure if they have ever bonded, but then we have little things that happen that make us see that they do love and care for each other. We had to drop Honor off at the groomers one night at like 7pm and Alex was so distraught over going to bed without Honor. Then we came home and as soon as we brought Honor in to find his boy......he jumped on the bed and licked his face. We have also seen Honor go to Alex when he has been whining or crying. It is very moving to see.
We are so glad that we had support from family friends and community to help us make this friendship so possible.
We also have been working with members in the state house to help make changes in some of the service dog laws here in Massachusetts. We have Paul Frost's support and Stephanie his right hand girl helping us get a bill passed to change a few laws....More information to come about these.
We were also pleased to hear that the first graders at Mary D. Stone School were awarded some state funds for a service learning grant. This grant was written by one of the first grade teachers. The boys and girls bagged dog bones, and attached a homemade card that listed a few things and differences about service dogs and pets. These packages will be posted through the town of Auburn to educate the community about service dogs. When Alex, Honor and I visited the rooms while the kids were making these bags, a lot of kids made a picture of Alex in his helmet with Honor by his side. Alex has truly been accepted socially here in town, our own little "rock star" so to speak. This is so fun to watch, some days Alex eats it up everyone knowing him, other days he is very shy about it.
Finally we are ready to take part this Saturday in the Walk for Epilepsy in Boston sponsored by the Epilepsy Foundation of Msssachusetts/Rhode Island. We look forward to be a part of that very special day. Next year I want to dedicate my free time to the Epilepsy Foundation to help spread awareness about this disease and help educate communities about how it affects different people.
Please do feel free to help us by sponsoring any of us for the walk. We will post many pictures Saturday Night. So stay tuned. ...........................................................
If you wish to join us at the Walk for Epilepsy in Boston:
Join us (for a sunny day we hope)
at the DCR's Artesani Park,
Soldiers Field Road, Boston, MA Saturday, May 16, 2009
9:00 a.m. check-in
10:00 a.m. 2.5 mile walk
11:30 a.m. BBQ, music and fun
To register for the walk online click www.firstgiving.com/efmri
We also created a Fundraising Page on the Epilepsy Foundation Page (www.firstgiving.com/alexs-angels/) Please check it out and donate anything you can every penny helps.
Check back Saturday/Sunday for our pictures.
Alex's Mom & Dad