4 Paws For Alex

Looking for answers ....... Praying for a Miracle

                                 Our Story

Let us tell you about our son Alexander who is now 5 years old.

(Written 3/2008)

Alex was born on our seventh wedding anniversary, Oct 14, 2002. He was a healthy and beautiful 9lb 14oz baby boy who was welcomed into our family by us and his older sister Jennifer.

For the first three years of his life, Alex was a perfectly normal, healthy child.  That all changed abruptly on July 17, 2006. As we were standing in line at a store, Alex went completely limp and crashed to the floor. Unbeknownst to us, he was having his first seizure.

After several agonizing visits to a variety of neurology specialists, we were told that Alex has a rare form of Epilepsy called Myoclonic Astatic Epilepsy (MAE) , also known as “Doose Syndrome.” Alex has spent countless days and weeks in the hospital as doctors attempted to regulate his medication.  Each trip began with such hope, but unfortunately resulted in little change to Alex’s condition.  Over the course of the past eighteen months, Alex has been treated with 9 different seizure related medications. 


He was also started on a strict medical diet called the Ketogenic Diet, which allowed him to eat only high fat and high protein foods, of which everything had to be weighed precisely on a scale.  Cookies, bread, cereal, juice and even milk were NOT ALLOWED while Alex was on the diet.  One year and five months later, Alex's condition is still not responsive to treatment.


Currently, Alex has anywhere from 10 to 30 drop attacks a day, and several “tonic-clonic” seizures at night while sleeping. Because of the number of seizures he experiences in one day and their threat to his safety, Alex’s day is limited to certain activities. He is unable to do simple things such as ride a bike, play at the playground, go swimming or even take a bubble bath. All of these normal activities could result in him sustaining a serious injury should he fall. He has experienced many bodily injuries due to his falls and must wear a helmet during most activities. As a result of this, Alex needs 24 hour supervision and protection.


With that thought in mind, we are asking you to make a tax deductible donation to ��Paws for Ability” in honor of our son, Alex. We have been accepted into the ��Paws” program.  This program will provide Alex with a dog that is specially trained to protect children from harm should they have a seizure.  In order for Alex to receive his dog, we must raise $11,000.  ��Paws” feels this is necessary to help defray the costs they incur while training their dogs. This is no small task, so every penny helps!


This dog will assist Alex in leading a more normal life, and help keep him safe from serious falls.  It will also provide moral support to him during his frequent hospital stays at Children’s Hospital (Boston).  In September 2008, Alex will be entering Kindergarten, and we hope to receive the dog by then to help with this big transition. Thank you for all your prayers and well wishes and any and all help you can give.


If you wish to learn more about 4Paws, please go to http://www.4pawsforability.org/


Contact us at : myalex@4paws4alex.org



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